Her name is Khadija Khatoon Khadija, 21, from Kolkata, West Bengal, Eastern India, When she was born, doctors were baffled by her condition for months. Her parents took to the hospital she was admitted for six months and they did lots of tests but doctors eventually concluded there's nothing they could do.
As Khadija get older she refused any help. Doctors told her parents when she was a baby that if she attempted surgery she could die, so they have lived with that fear. Now that Khadija is much older she has decided herself that she doesn’t want to have surgery. She doesn’t want to risk dying."
Although it has never been confirmed, they believe she has a form of neurofibromatosis, a rare deformity that causes tumours to grow along nerves. Medics told Khadija and her family there was nothing they could do after extra skin continued to grow out of control.
Dr Anirban Deep Banerjee, a neurosurgeon from Apollo Hospital, Kolkata, said:
"I believe she is suffering from Neurofibromatosis but to confirm we would need to do a gene test. There's a possibility she has a tumour inside her face which could be fatal. Right now there is no way of knowing if she has tumour inside the extra skin and if left they could kill her."
"If she's willing we would need to do a lot of tests to determine how successful surgery would be."
Source: Daily Star
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